Each year, up to 400 women in New Zealand are diagnosed with advanced breast cancer (ABC) where breast cancer has spread to other parts of the body.
Management of symptoms in patients with ABC is mainly addressed at follow-up medical oncology appointments, or during medical oncology treatment visits. This approach to management of symptoms, results in many patients (particularly when on endocrine therapies) having long intervals without interaction with the health care system and their specialist Oncology team. As a consequence, women endure chronic symptoms that they largely have to manage themselves, often with poor quality of life.
The aim of this study is to assess the impact and acceptability of a customised, electronic, nurse-initiated patient symptom management programme, integrated with clinical decision support, for reporting and managing of symptoms of patients with ABC. The effect on symptom management, quality of life and unscheduled hospital care will be evaluated. The use of an electronic symptom management programme (ABCpro survey) combined with integrated clinical decision support is unique and a novelty, that has not been used in the oncology setting before. The transition to telehealth care in the COVID-19 era has encouraged the use of Patient Reported Outcome Measures (PROMs) in clinical practice